Research
The Sickle Cell Unit (SCU) has blazed an impressive trail over the years in research and clinical work to prolong life and survival of people with Sickle Cell Disease (SCD), and advocating on the issues of Newborn Screening for SCD as a policy imperative for regional populations. Between 1973 and 1981, the SCU conducted the Jamaica Sickle Cell Cohort Study, that among other findings, demonstrated that 15% of Jamaican adults are at risk of having a child with SCD and that 1 in every 150 Jamaicans are born with SCD.
The data from this seminal Study in Jamaica, informed resolutions by the National Institutes of Health (NIH), USA (1987), the World Health Organization (WHA59.20, 2006) and the United Nations (A/63/L.63, 2008), which all declared SCD to be a global public health issue.
Major areas of focus in research are implementation science, women’s health in SCD, clinical trials and psychosocial aspects of SCD. The Unit plays a critical role in the Sickle Cell Technical Working Group, which has achieved universal newborn screening and is now implementing tools and strategies to scale up the use of proven interventions island-wide.
The SCU has provided training in aspects of SCD across the island and regionally to various types of healthcare workers, decreasing the need for patients to travel to access quality care.
The SCU collaborates closely with international partners such as the Caribbean Network of Researchers in Sickle Cell Disease and Thalassemia, the Sickle Cell Disease Coalition and Sickle in Africa and are involved in the move to managing data in a way that encourages international comparisons and builds global knowledge.
Faculty Members
- Monika Asnani
- Jennifer Knight-Madden
- Angela Rankine Mullings
- Zachary Ramsay